The mission of the ALD-AMN Global Alliance is to unite like minded charitable foundations from around the world with the common goal to spread awareness, raise money to advance research for treatments and a cure, expand the bone marrow and cord blood registries and provide support, direction, and information to ALD and AMN affected persons and their families. To see the members of the alliance, click here.
Adrenoleukodystrophy (ALD) is the most frequent inherited disorder of the central nervous system white matter with a minimum incidence of 1 in 17,000 newborns. It is a progressive, systemic metabolic disease that affects myelin, spinal cord, peripheral nerves, adrenal cortex and testis. Click here for more information.
Adrenomyeloneuropathy (AMN) is the adult form of ALD. AMN patients generally have spinal cord dysfunction, which leads to the initial symptoms that include difficulties in walking or a change in the walking pattern. Click here for more information.